
Cousin Madeline, Callum and Kaitlyn
THANK YOU for making a difference. “It’s not what we have in our life, but who we have in our life that counts.” J.M. Laurence
In physical therapy I worked on rolling, electric stimulation, and balancing. It went well except we are still trying to find the exact places on my forearms to place the electrodes to stimulate the muscles that control my fingers.
In my education class a Craig graduate named Trish Downing spoke to us. Prior to her injury, Trish was an Olympic hopeful in cycling. She was hit by a car while she was training on a bicycle and is now a level T-8 paraplegic. In the past five years since her injury, she has gone on to compete in many competitions all over the world, including triathlons. She was VERY inspirational!
I had a group exercise class where we did weight training on the mats. In occupational therapy we played a board game called Sequence with Matt Ream, my Uncle Greg, my therapist, Gail, and myself. We needed to stop at 4:00 to go see the service dogs but I was declared the winner.
My Aunt Deb and Uncle Greg, Mercy and kids, and Whitney and Justin’s family were here to visit today. Uncle Greg wants to get me a service dog. Craig recommends that you wait until you have had your injury for at least two years before you get a dog. The Ingersolls also visited and helped me download from my computer to my IPOD. They also brought a special gift for me to play with. THANK YOU!
Gyros seem to agree with me. I had one for lunch and one for dinner. My appetite is much better.
My shivering and temperature started about five o’clock today and my temperature got to 102.5 by about nine so I had to have blood drawn to check for an infection. I think my body is still trying to figure out what happened to it!
My scripture from my scripture quilt is from Ron, Dayna, Lexie, Kassie, Riley and Ellie Andus. It is found in 1 Nephi 3:7. Thank you, Andus Family, for everything you have done for our family!
“And it came to pass that I, Nephi, said unto my father: I will go and do the things which the Lord hath commanded, for I know that the Lord giveth no commandments unto the children of men, save he shall prepare a way for them that they may accomplish the thing which he commandeth them.”
I was able to attend all of my classes today, all of which were very uplifting. After working on rolling and sitting up with Heather, I went to my education class. Today there was a company called Adaptive Sports that gave a presentation showing all the ways quadriplegics can still enjoy the athletic outdoors. These exciting activities include whitewater rafting, skiing, canoeing, kayaking, mountain biking and handcycling. They brought a handcycle and a mountain bike that my Mom took a spin on. I am excited to be well enough to try these out in a few months. Later in the day we went to check out wheelchair accessible vans at Craig.
Aunt Debbie came to visit today and I ate a whole gyro for lunch. My appetite hasn’t been that great lately. It was very satisfying to eat a majority of a meal.
Another highlight of the last couple of days was switching from an IV blood thinner to shots. My PICC line was also removed today so now I am eligible for a water therapy class.
I’m over my major health problems except I have fevers and chills from mid-afternoon until evening. We have learned that this is common for spinal cord injury patients and that it does get better with time. My accident was six weeks ago today and we have already seen improvement in the movement of my fingers and hands.
Special thanks to some wonderful friends of ours from Chicago, Marcie, Terry, Matt and Taylor Lenio, who emailed me on Tuesday and included the following note and scripture:
I love that you are including scriptures from your quilt on your blog and I would like to share a favorite scripture of mine. It is Helaman 5:12 (words that Helaman spoke to his sons Nephi and Lehi), and it was my son's missionary scripture and was instrumental in sustaining him when the road was difficult: "And now, my sons, remember, remember that it is upon the rock of our Redeemer, who is Christ, the Son of God, that ye must build your foundation; that when the devil shall send forth his mighty winds, yea, his shafts in the whirlwind, yea, when all his hail and his mighty storm shall beat upon you, it shall have no power over you to drag you down because of the rock upon which ye are built, which is a sure foundation, a foundation whereon if men build they cannot fail."
(Bridgette) I also like the following quote from James R. Bradley from a book entitled Gratitude. “As I think of the word ‘Gratitude,’ I recall that all the really great things in life are expressed in the simplest words: ‘purpose and meaning; friends and family; caring and community; love and work; appreciation and gratitude.’
The Walters’ family is grateful to know each of you.
Dear Family and Friends,
It's Sunday evening and Whitney, Callum, Isabelle and Kaitlyn just left the hospital. Whitney made beef stroganoff and mashed potatoes for dinner . . . thank you, Whitney, we love all the comfort food you make for us!
I told Ryan I would write the blog tonight in the hopes that he will feel good enough tomorrow to resume writing. Ryan has been flat in bed since Thursday night. He finally has the pain in his neck and chest under control with the help of pain medication. The last 24 hours he has been battling with bladder spasms that are extremely painful. He has started on medication but it takes 48 to 72 hours to help with the spasms. He finally ate some soup and part of a grilled cheese sandwich for lunch today, so we are grateful for that. He hasn't had much of an appetite for the last couple of weeks and has lost over twenty pounds. The doctors have told him his job is to eat, drink and rest.
We've had a very quiet weekend. Eric and Zach Ingersoll and Russell Gardner brought the sacrament to us this morning. Thank you. Barry and I took turns reading to Ryan from the Book of Mormon and a book that was sent to him from a man named David Treat entitled "Going Through the Fire, Developing a Faith That Perseveres." In 1993 David and his family were involved in a serious auto accident leaving him a quadriplegic on a vent and his wife with a very significant brain injury. Prior to his accident, David was an attorney and he and his wife were very involved in a youth ministry and David coached his children's sports teams. The book is written over an eight year period and tells of the physical and emotional toughness of a spinal cord injury as well as his faith . . . faith in his family, faith in his friends and faith in God. It's an inspiring story and once again we are reminded of the importance of having faith and a personal relationship with our loving Heavenly Father.
Numbers 6:24-26 is the scripture Scott and Jan Norton's family choose to share with Ryan.
24 The Lord bless thee, and keep thee:
25 The Lord make his face shine upon thee, and be gracious unto thee:
26 The Lord lift up his countenance upon thee, and give thee peace.
We are thankful for your love and friendship and hope you have a great week.
Love, Bridgette, Barry and Ryan
It's Friday evening about six. I'm going to try to update you since Ryan last wrote on Wednesday.
On Thursday, Ryan had a full schedule of therapy. He worked with Heather in occupational therapy and tried out his manual wheelchair using his arms to wheel him through the halls. He then had a cooking class followed by a group class where they talked about things to watch for with spinal cord injuries. Ryan then went to a group exercise class and was supposed to have occupational therapy after that but started running a high fever again.
Barry and I met with the occupational and physical therapist at our home to see what modifications needed to be done in order to bring Ryan home. Barry and I also looked at new homes in our area. We would really like to build an addition on our home for a bedroom and bathroom for Ryan in the area outside of our sliding glass door on the deck.
Whitney spent the afternoon and night with Ryan. He really enjoys having her expertise and bedside care. The fevers continued most of the night. About four in the morning, one of Ryan's favorite nurses, Chris, told him that his right leg measured larger than it has been (one of the signs of a blood clot). By five, Ryan began having chest pain and shortness of breath. They took Ryan over to
Ryan said it was a scary night and he felt anxious. His nurse Chris, told him to rely on his faith and to not be afraid. Ryan said he felt much better after she talked to him. Chris has been an angel to Ryan.
Ryan is on bed rest for the next 48 to 72 hours. At Swedish, Ryan had a central line (PICC) put in his arm that goes directly to his heart. He is receiving large doses of a blood thinner (heparin) and they are also starting IV fluids tonight.
It's hard to have him be so sick. He is a strong young man and usually recovers quickly. Hopefully he will feel good enough by the beginning of next week to be back in therapy where he is working so hard to be independent.
Here’s a scripture we wanted to share from the quilt our ward made for Ryan. It is from the Eldridge family.
Mormon 9:21
“Behold, I say unto you that whoso believeth in Christ, doubting nothing, whatsoever he shall ask the Father in the name of Christ it shall be granted him; and this promise is unto all, even unto the ends of the earth.”
We love you and we appreciate your continued prayers,
Bridgette, Barry and Ryan
Monday
10 to 11 - Physical Therapy
1 to 2 – Patient Education Group
2 to 3 – PT/OT Exercise Class
3 to 4 – Occupational Therapy
Tuesday
10 to 11 - Physical Therapy
1 to 2 – Patient Education Group
2 to 3 – Occupational Therapy
Wednesday
10 to 11 - Physical Therapy
1 to 2 – Patient Education Group
2 to 3 – PT/OT Exercise Class
3 to 4 – Occupational Therapy
Thursday
10 to 11 - Physical Therapy
11 to 12 – Cooking Group
1 to 2 – Patient Education Group
2 to 3 – PT/OT Exercise Class
3 to 4 – Occupational Therapy
Friday
10 to 11 - Physical Therapy
2 to 3 – Occupational Therapy
We had an early start today at
My sister, Whitney, and her two kids, Callum and Isabelle, and my cousin Mercy, and her two kids, Taryn and James, went with Mom and I to watch Go Ball. All players are in wheelchairs and the goal of the games is to have each player on your team touch the ball and then throw it at the wall for a goal. The teams were one person short so Mercy got in a wheelchair and played her first game of Go Ball. I'm looking forward to feeling good enough to play
I had a nap after PT so I'd be ready for occupational therapy at three o'clock. In OT one of my therapists, Dana, was able to get me cleared for off campus passes after taking us on a short walk around the block. Isabelle was on my lap for the whole ride. She gets really quiet when she is on my chair and will not give up her spot to anyone else.
Love, Ryan
A note from Bridgette - Ryan is working hard in spite of the fact that he is still running a temperature in the evening. The infectious disease specialist is running more tests to see if he has an infection or if his body is just trying to regulate his temperature after his accident. Ryan is looking forward to rehabilitation without the blood pressure and temperature control issures. We're proud of how hard he is working at Craig.
Greetings from
It’s Friday, the 13th of January, and so far it has been a great day for Ryan. Ryan is going to write his own blog about today’s activities later tonight but I thought I would catch everyone up on the activities of the past couple of days.
We are all settled into Ryan’s new suite and enjoying having our own bathroom and I have a pull-out sofa for me to sleep in. It’s very family friendly on the East side. Isabelle and Callum feel right at home and I think it helps the other patients to see little children. Whitney and her family spend a fair amount of time at Craig and Ryan loves to have them here. Isabelle is now a frequent wheelchair passenger and takes her position on Ryan’s lap very seriously!
On Wednesday night we all watched quad rugby in the big gym. It is wild! Ryan looks forward to the time when he can participate. I’m not so sure how I feel about it . . . there were two or three times when the player’s wheelchairs were knocked over!
Ryan continues to work hard in physical therapy. We are learning to use a slide board to transfer Ryan from his wheelchair to the mats for therapy and from his bed into his wheelchair. For now Ryan is using an electric wheelchair so that he can tip himself back when his blood pressure is low. Ryan does most of the work now when transferring and will eventually do his own transfers. As soon as his blood pressure issues are resolved, Ryan will use a light-weight manual wheelchair.
In occupational therapy, Ryan has been working with his hands to regain some dexterity. He can move all of the fingers on his right hand in a cupping shape but cannot move his fingers from side to side. His left hand has less mobility than his right. He continues to do weight bearing exercises to increase the muscles in his biceps and triceps. We are all so grateful for the strength he has in his arms.
Thank you for your emails, concern and friendship.
With our love,
Bridgette, Barry and Ryan
Dear Family and Friends,
The past two days have been eventful for Ryan. On Monday we learned that Ryan was being transferred to Craig East. Ryan spent his first two weeks at Craig West where they take care of the more medically challenged patients. He became quite attached to his nurses and techs and they were likewise very attached to Ryan. His former caregivers have already been over to visit several times since we moved to Craig East. We originally thought that Ryan would be at Craig West for six to eight weeks.
Today we had our first family conference with our doctor, head nurse, occupational therapist, and physical therapist and case worker. The doctor explained Ryan’s injury in detail and discussed his medications. His medical team is anticipating a release date from Craig of April 4th.
All of Ryan’s caregivers mentioned that he is super motivated and a pleasure to work with. He shows a great deal of gratitude toward those who are helping him become independent. At Craig East, Ryan and our family will be educated all about the care of quadriplegics. Ryan will have a full schedule with occupational therapy, physical therapy, exercise classes, pool therapy, transfers, and technology and will eventually meet with a driving instructor.
At Craig East, the patients have their own “suite” with a bathroom, bedroom and living area with a fold out couch. Ryan is in
Ryan continues to face challenges with his blood pressure and often feels light headed when he sits upright. After his body adjusts to his spinal cord injury, he should be able to sit upright for longer periods of time without getting a headache and feeling light headed.
Callum and Isabelle saw Ryan for the first time in his wheelchair on Monday. Callum squealed with delight as he and Ryan zoomed down the halls together. Izzy is content to watch from afar for now.
We continue to feel blessed to live so close to
Our special thanks to Gary Bolingbroke and Glenna Pier, who spent several hours with Ryan yesterday and today. He thoroughly enjoyed visiting with you both.
Love, Bridgette, Barry and Ryan
PS - The missionaries came up to see Ryan on Sunday night. Tom and Brenda Thompson saw them out tracting and told them about Ryan. The missionaries had lunch with Ryan today and Ryan invited them for dinner on Saturday night.
Last night Ryan dictated the information in his blog. Unfortunately we were unable to save it on his site so we'll rewrite it today.
Today has been my best day just as every day and even every minute improves. I stayed up in my wheel chair for four and one-half hours and did physical therapy and occupational therapy. On Wednesday I used 1.5 pound wrist weights and today I used five pound wrist weights to do bicep curls. Gail, my physical therapist, doesn't let me hold dumbbells in my hands because she says my fingers don't have the strength to hold them confidently, especially since I would be holding them over her toes. Therapy was exhausting so I came back to my room and took a three and one-half hour nap.
We had a delicious meal from our Relief Society President, Linda Ingersoll. I also had lots of great visitors. My sister, Hayley, stayed with me on Tuesday and Wednesday nights. I love having one-on-one time with my family.
Tonight they had a panel of Craig graduates come to talk to parents and patients. I was to tired to go but my parents and sisters went. Later, two of the people on the panel came by my room and talked with me. Chanda was shot in the neck when she was nine years old and is Miss Wheelchair
Emails, telephone calls and especially visits from friends and family have been the best possible therapy these past two weeks. I go to bed every night very happy and optomistic about my situation and thinking of you as I close my eyes.
I love and appreciate you all very much.
Ryan
Ryan has developed a little of his Grandpa Warren’s talent for storytelling and loves to have visitors. There are no set visiting hours at Craig Hospital so Ryan is able to receive visitors from about 8:00 am to 8:00 pm. Ryan needs to rest and maybe even have a little nap during the day.
Ryan has physical and occupational therapy this week as follows:
Monday 1/9
Occupational Therapy 11-12
Physical Therapy 1-2
Tuesday 1/10
Therapeutic Rec 1:30 tp 300
Family Conference 3-4
Physical Therapy 10-11
Occupational Therapy 3-4
Physical Therapy 10-11
Occupational Therapy 3-4
Friday 1/6
Physical Therapy 10-11
Occupational Therapy 3-4
You are welcome to attend anytime between 8 am and 8 pm, including during physical and occupational therapy. PT and OT times change each week so we will be updating the times each week. Ryan would love to see you!
When Ryan first arrived at the hospital after his accident, he had very little movement or feeling in either hand and severe neurological pain throughout both. Since then, he has regained a lot of feeling and movement in his right hand and can move the fingers independently. Oh his left hand he has sensory perception throughout the hand expect on the end of his pinkie. Last night, for the first time, Ryan was able to move the pinkie on his left hand. The pinkie is controlled by the spinal cord at a vertebra at a lower point than the other fingers. Knowing this gives hope that Ryan will regain more movement throughout the rest of his fingers on his left, although there are no guarantees. For anyone who has ever heard Ryan play the piano, you can understand how exciting this news is.
Yesterday we posted some information about an experimental research study in which Ryan was hoping to be a participant. One of the prerequisites for paricipation was that the bruise on the spinal cord be less than 30mm long. (a little over an inch) When the MRIs were taken yesterday, they revealed that Ryan’s spinal cord bruise had grown to 37mm from the 28mm measurement taken immediately after the accident. Ryan will not be able to participate in the study. Ryan feels that, “This was Heavenly Father’s answer as to whether or not we should participate in the study. Not participating in the study will allow me to continue with rehabilitation and not experience the effects of major surgery again.” Ryan’s sister, Whitney, did some research and found that 53 SCI research studies are in progress in the world today. Many of the studies can only be done after a year of rehabilitation. Ryan’s participation in the current study would have likely precluded him from participation in later studies. He will have many opportunities yet to come as the field of SCI medicine advances!
Ryan may have the opportunity to participate in an experimental operation that may increase his chances of getting some limited feeling below his current level of complete paralysis-about midway down his chest. The research experiment began in
The experimental procedure attempts to create healing in the spinal cord that naturally occurs elsewhere in the body but does not occur in the spinal cord because it has no blood flow to it. Non-spinal cord injuries are healed when white blood cells at the injury site produce macrophages (white blood cells) that repair the damaged tissue. In order to simulate this process in the spinal cord, a patient’s skin and blood are combined and injected into the spinal cord in six sites about 1.5” below the injury site. In order to qualify for the experiment, Ryan must have the surgery within 14 days after his injury and must pass a number of detailed screening tests. Ryan was tested today but has not yet received the results. If the results do not disqualify him from the experiment, he will be placed into the experimental or control group. If Ryan is placed into the experimental group, a plastic surgeon will cut a diamond shaped piece of skin out of Ryan’s inner upper arm. The cut will measure about 2 1/4” x 4 1/2”. Also, Ryan will have some of his blood drawn from his chest above his heart because it has the highest oxygen content there. The skin and blood will be combined and the white blood cells will be incubated for 36 hours before an operation to inject it into his spinal cord. The surgery will be delicate, requiring the surgeon to remove the rods on the back of Ryan’s spinal column inserted during his first surgery, cut through the dura, make the macrophage injections and cover the incision with dura from a cadaver.
Ryan has been optimistic about the experiment from the first time he heard about it. Ryan is in excellent health and would be a great candidate for the surgery. Nevertheless, 1/3 of all those who are involved in the experiment will be in the control group and not receive the experimental treatment. Ryan feels that even if he does not receive the treatment, he feels he can contribute to the experiment as a whole. For more information about the experiment, look at www.spinalcordtrial.com
On Wednesday, December 28th, Ryan was transferred to
I am so thankful for all of the visitors that have come to visit me. There have been over 100 people from church and work along with family and friends that have come to visit me and tell me they are praying for me.
I am very thankful for the movement and feeling that I have in my head, arms and hands.
Prayers and kind words of ward members and friends have been the greatest healing medicine during this time.
I know that the Gospel of Jesus Christ has been restored in these Latter Days. Especially at this time of year I am very thankful for the anniversary of both the prophet Joseph Smith’s birthday and the Savior Jesus Christ’s birthday.
Through this experience I have grown to know, that Jesus Christ has done more for my soul and the souls of all of us, than anyone that has ever lived here. That Joseph Smith was his prophet and that he did more for my soul than any other man that lived in it except Jesus Christ.
I want you all to know, that Jesus Christ has replaced my fear and anger with hope and joy through small examples of kindness and the sweet feeling of the Holy Ghost.
I also know that one day my body and my mind will be connected perfectly as they once were. I know this, through the example of Jesus Christ and his resurrection.
I know that Jesus Christ has felt every pain and sorrow that I have felt during this experience and throughout my whole life.
I don’t know why this happened, at the time in which it did. But I know that if I let it, it can be an experience which will bring me and others closer to Heavenly Father and Jesus Christ.
I have a strong desire to go and serve a full time mission; I know that one day I will serve a full time mission. And in preparation for that mission, I will be a missionary now!
Thank you all so much for your great examples and loving remarks and your faithful prayers on my behalf. I pray that this experience may bring to others the same love for the atonement and Jesus Christ as it has brought to me.
If my going through this experience can help me to help God with even just one person to join the church or even regain their faith and become active in the church, then this small sacrifice I am going through will be well worth it.
Cat scans and MRI’s revealed that Ryan had broken the sixth and seventh vertebrae. At about 5:00 pm, Ryan was taken into surgery for a six hour operation. During that operation, a permanent plate was attached to the front of vertebrae 5, 6, and 7. A pair of rods were attached to the back of the same vertebrae. The surgeon felt the operation was a success and resulted in a solid structure that would protect the damaged spinal cord by effectively fusing together the three vertebrae.